My CD57 numbers have not improved in spite of my feeling better, so I will be off antibiotics for 3-6 weeks then start IV therapy - pic line at the end of April for about 4-6 months.
I have been off of antibiotics for about 4 days and am starting to feel joint pain, muscle pain in the back and night sweats etc. again. What we have been working on the Babesia more than attacking the Lymes but we thought it might have had an effect on it. So actually I have been in a holding pattern.
I have heard of Dr. Gordan but don't know much about him. I have thought about seeing him myself but am still seeing Dr Schweigh http://www.hillparkmedicalcenter.com/practitioners.html#sunjya I believe he is doing everything he can and he has spoken to Joseph J. Burrascano Jr, MD: (the granddaddy who has written the guidelines for Lymes treatment) so I feel he is on top of it. http://www.ilads.org/guidelines.html