Wednesday, April 25, 2012

Steroids and Lyme Disease a recipe of disaster

Steroids and Lyme Disease a recipe of disaster  A must read article regarding Lyme and steroids

"Steroid Disaster"
Corticosteroids suppress the immune system, the last thing a Lyme patient needs is to lower immunity. Can you imagine, your body trying hard to fight off the spirochete bacteria and suddenly and immunosuppressants is introduced, "freezing" your immune system, rendering it unable to battle, giving great advantage now to the Lyme bacteria to spread and go wherever it wants and it does!

Corticosteroids can last in the body for months, usually around 6 months. With LD this gives many months for the bacteria to spread, possibly cause damage & according to Dr. Burrascano the prognosis can be much worse.  For the full article and critical information visit


I received this comment on my previous post  ..Bells Palsy and SEVEN negative lymes tests before ....
- they made a very good comment which I would like to share with you..  NO STEROIDS LYMIES!!  
It is true the steroids weaken your immune system and make you more vulnerable and a breeding ground for the Lyme bacteria.

I was diagnosed with Lyme in 2001 but it was not until approx 3 years later when a mainstream Dr gave me prednisone, that I was suddenly stricken by Bells palsy. I learned after that Lyme patients should never receive steroids which can crush the immune system and cause new Lyme symptoms. Not only do I still have Bells but the right side of my face (bells side) pulls and aches. If you dream a line from the top of my nose down to my chin, that entire right side is effected by a pulling down and the pulling gets more intense during the evening. Sometimes the pain is so intense that I put a cream on it made up of lidocane and gabaphentin. Recently I was given a script for a liquid called Pennsaid which is a type of NSAID and seems to be working better than the other. 

Sunday, April 15, 2012

Bells Palsy and SEVEN negative lymes tests before ....

I just recived this comment on an older post I have (January - 2009) and thought that you all should read this in case you missed it. Why am I sharing it here? ....beacuse this happens -A LOT ! If you have a child or your an adult that comes down with Bells Palsy - you need to consider Lyme disease, 60% of all BP patients really have Lyme. Bell Palsy is one of the symptopms of Lyme.

For a more complet list on sympotoms visit this link  

From Jessica
I had bells palsy years ago, and had SEVEN negative lymes tests before going to a neurologist who finally found out I was in 3rd stage lymes disease. It is such an embarrassing horrible thing. Especially at the age of 14 when I had gotten it. But yes....CANNOT STRESS ENUF about repetitive testing. If I didn't agree to finally get a spinal tap, would have taken years longer or never have known and maybe died.
I DID finally recover,after months of staying in the house and hiding from my teenage friends. (I was a ballet dancer and competiton cheerleader- neither of which I would do looking like that)
I still remember going from doctor, and my mother just sitting up at nite crying because she didn't know what was wrong with her only. child... it got to a point where I thought I would b like that forever and got very suicidal. (Which I an positive has something to do w lymes also. I was a VERY positive child and all of a sudden was going from As and Bs to Ds and Fs in school. PLEASE PLEASE KNOW THAT THERE IS RECOVERY.... I AM 100% BETTER NOW, and a happy healthy 34year old women. Good luck to u all and my prayers are wu 

Thursday, April 12, 2012

Dr. Phil Show - Topic Lyme disease

Show to air Friday April 13
Save the date Dr. Phil show to air Friday April 13 - Topic Lyme disease  -If you hike, plein air paint, or basically just go outside this mini clip on this link is a must see.

Here is a preview clip of TV newswoman/ Lyme advocate Brooke Landau being interviewed on the Dr. Phil show about her Lyme experience. Other guests on the show include two additional Lyme patients, Lyme-literate doctor Chitra Bhakta, MD, and the IDSA’s Dr. Paul Auwaerter.    You Tube Clip

Monday, April 2, 2012

Letter from Lyn

Nine years ago I was infected. I knew I was and my doc--federal government--refused to believe me. Over the next 9 years I became sicker and sicker, and was labeled all sorts of psychiatric dx's--"no, you're not must be, that that, must be them", which will dx's will follow me into eternity. I test negative on Western Blot, as many other sufferers do. My doc in USA isolated a biofilm which may be caused by mosquito--some insect anyway and finally I get an antibiotic which I will take for my lifetime, and am prone to infections--I've had a week-duration flue twice since Christmas, and the 24-hour kind once. My doc, who says no one has been cured yet, has a lab and studies ticks from all over; here is the website but clinically I have 100% Lyme. Doc Fry said the antibiotic kills it too. Very slow recovery. My sis died from Lou Gerihig's at 57 and Doc Fry says that is looking like an insect-borne infection too, "maybe two". Difficult to find a doc who is sympathetico to something they cannot see--my docs 'saw' a "low level" infection which they attributed to "you arthritis". I have Osteoarthritis which is not an infection, but it was a good excuse for them.