There is a Lyme petition at the following address:
https://petitions.whitehouse.gov/petition/reform-infectious-disease-society-america-treatment-guidelines-lyme-disease/Pj9jG0pX
The petition will only be up until 2/10/13, and we need 25,000 signatures for the White House to review and respond.
This is the best chance for raising Lyme awareness I have seen, so please spread the word!
Monday, February 4, 2013
Monday, November 12, 2012
List of Diseases Spread by Deer Tick Grows
Information on a List of Diseases Spread by Deer Tick Grows, Including Malaria-Like Problems and Potentially Fatal Encephalitis
ScienceDaily (Nov. 12, 2012) — An emerging tick-borne disease that causes symptoms similar to malaria is expanding its range in areas of the northeast where it has become well-established, according to new research presented November 12 at the annual meeting of the American Society of Tropical Medicine and Hygiene (ASTMH).
Saturday, September 8, 2012
JOSEPH J. BURRASCANO JR., M.D. DIAGNOSTIC HINTS AND TREATMENT GUIDELINES FOR LYME
My doctor followed the JOSEPH J. BURRASCANO guildelines and I feel blessed that he did. I feel great, have a full schedule and no current Lyme symtpoms it will be almost 3 years in remission in October. For information on Dr. Burrascano guidelines follow the link below.
DIAGNOSTIC HINTS AND TREATMENT
GUIDELINES FOR LYME AND OTHER
TICK BORNE ILLNESSES
Sixteenth Edition
Copyright October, 2008
JOSEPH J. BURRASCANO JR., M.D.
Link
Sunday, September 2, 2012
LOOKING AT LYME DISEASE - MSIDS
Mis diagnosed as ME/CFS, Fibromyalgia, Poly Myalgia Rheumatica significantly improved when treated for Lyme Disease. Perhaps more aptly described as Multi-Systemic Infectious Disease Syndrome - MSIDS.
POLY MYALGIA RHEUMATICA
http://ard.bmj.com/content/49/7/521.abstract
Ann Rheum Dis 1990
Research Article
A seasonal pattern in the onset of polymyalgia rheumatica.
M A Cimmino,
R Caporali,
C M Montecucco,
S Rovida,
E Baratelli,
M Broggini
+ Author Affiliations
Department of Rheumatology, Genoa University, Italy.
Abstract
The seasonal distribution in the onset of polymyalgia rheumatica (PMR) was determined in 58 patients with the disease and compared with that in 44 patients affected by rheumatoid arthritis of elderly onset (EORA). Thirty six (62%) cases of PMR developed during May to August; by contrast, only 14 (31%) cases of EORA developed in the same months, this latter disease failing to show any seasonal clustering. The monthly distribution of PMR correlated with outside temperature and hours of sunshine. These data suggest that PMR might be triggered by such factors as actinic damage of superficial vessels or infective agents with a seasonal cycle. Finally, the summer clustering of PMR may be helpful in the differential diagnosis from EORA.
Hmm! May to August isn't that prime tick sequesting time?
Ann Rheum Dis 1990
Research Article
A seasonal pattern in the onset of polymyalgia rheumatica.
M A Cimmino,
R Caporali,
C M Montecucco,
S Rovida,
E Baratelli,
M Broggini
+ Author Affiliations
Department of Rheumatology, Genoa University, Italy.
Abstract
The seasonal distribution in the onset of polymyalgia rheumatica (PMR) was determined in 58 patients with the disease and compared with that in 44 patients affected by rheumatoid arthritis of elderly onset (EORA). Thirty six (62%) cases of PMR developed during May to August; by contrast, only 14 (31%) cases of EORA developed in the same months, this latter disease failing to show any seasonal clustering. The monthly distribution of PMR correlated with outside temperature and hours of sunshine. These data suggest that PMR might be triggered by such factors as actinic damage of superficial vessels or infective agents with a seasonal cycle. Finally, the summer clustering of PMR may be helpful in the differential diagnosis from EORA.
Hmm! May to August isn't that prime tick sequesting time?
What a thought provoking piece of research shame they didn't consider other epidemiological possibilities. My own illness which was diagnosed as Poly Myalgia Rheumatica turned out to be Lyme Disease. In fact reading about Lyme Disease and knowing the many problems with the vascular system I have to question the Giant Cell Arteritis? But then hey perhaps that is just me adding two and two and making five, what would I know about medicine.
I am just glad that my GP finally realised after 4 years of illness with Fibromyalgia, ME/CFS, arthritis and muscle weakness leading to a Poly Myalgia Rheumatica diagnosis that it was possibly Lyme Disease some months later a specialist confirmed her suspicions. I was treated on long term antibiotics in line with ILADS Guidelines and eventually recovered my health.
I wonder how many patients suffering with Poly Myalgia Rheumatica are properly assessed for Lyme disease especially with the testing being so unreliable.
I am just glad that my GP finally realised after 4 years of illness with Fibromyalgia, ME/CFS, arthritis and muscle weakness leading to a Poly Myalgia Rheumatica diagnosis that it was possibly Lyme Disease some months later a specialist confirmed her suspicions. I was treated on long term antibiotics in line with ILADS Guidelines and eventually recovered my health.
I wonder how many patients suffering with Poly Myalgia Rheumatica are properly assessed for Lyme disease especially with the testing being so unreliable.
Read more about it, contact information and comments
Wednesday, April 25, 2012
Steroids and Lyme Disease a recipe of disaster
Steroids and Lyme Disease a recipe of disaster A must read article regarding Lyme and steroids: http://www.lymenet.de/literatur/steroids.htm
"Steroid Disaster"
Corticosteroids suppress the immune system, the last thing a Lyme patient needs is to lower immunity. Can you imagine, your body trying hard to fight off the spirochete bacteria and suddenly and immunosuppressants is introduced, "freezing" your immune system, rendering it unable to battle, giving great advantage now to the Lyme bacteria to spread and go wherever it wants and it does!
Corticosteroids can last in the body for months, usually around 6 months. With LD this gives many months for the bacteria to spread, possibly cause damage & according to Dr. Burrascano the prognosis can be much worse. For the full article and critical information visit http://www.truthaboutlymedisease.com/phpBB3/viewtopic.php?f=10&t=14
"Steroid Disaster"
Corticosteroids suppress the immune system, the last thing a Lyme patient needs is to lower immunity. Can you imagine, your body trying hard to fight off the spirochete bacteria and suddenly and immunosuppressants is introduced, "freezing" your immune system, rendering it unable to battle, giving great advantage now to the Lyme bacteria to spread and go wherever it wants and it does!
Corticosteroids can last in the body for months, usually around 6 months. With LD this gives many months for the bacteria to spread, possibly cause damage & according to Dr. Burrascano the prognosis can be much worse. For the full article and critical information visit http://www.truthaboutlymedisease.com/phpBB3/viewtopic.php?f=10&t=14
NO STEROIDS LYMIES!!
I received this comment on my previous post ..Bells Palsy and SEVEN negative lymes tests before ....
- they made a very good comment which I would like to share with you.. NO STEROIDS LYMIES!!
It is true the steroids weaken your immune system and make you more vulnerable and a breeding ground for the Lyme bacteria.
I was diagnosed with Lyme in 2001 but it was not until approx 3 years later when a mainstream Dr gave me prednisone, that I was suddenly stricken by Bells palsy. I learned after that Lyme patients should never receive steroids which can crush the immune system and cause new Lyme symptoms. Not only do I still have Bells but the right side of my face (bells side) pulls and aches. If you dream a line from the top of my nose down to my chin, that entire right side is effected by a pulling down and the pulling gets more intense during the evening. Sometimes the pain is so intense that I put a cream on it made up of lidocane and gabaphentin. Recently I was given a script for a liquid called Pennsaid which is a type of NSAID and seems to be working better than the other.
NO STEROIDS LYMIES!! .
- they made a very good comment which I would like to share with you.. NO STEROIDS LYMIES!!
It is true the steroids weaken your immune system and make you more vulnerable and a breeding ground for the Lyme bacteria.
I was diagnosed with Lyme in 2001 but it was not until approx 3 years later when a mainstream Dr gave me prednisone, that I was suddenly stricken by Bells palsy. I learned after that Lyme patients should never receive steroids which can crush the immune system and cause new Lyme symptoms. Not only do I still have Bells but the right side of my face (bells side) pulls and aches. If you dream a line from the top of my nose down to my chin, that entire right side is effected by a pulling down and the pulling gets more intense during the evening. Sometimes the pain is so intense that I put a cream on it made up of lidocane and gabaphentin. Recently I was given a script for a liquid called Pennsaid which is a type of NSAID and seems to be working better than the other.
NO STEROIDS LYMIES!! .
Sunday, April 15, 2012
Bells Palsy and SEVEN negative lymes tests before ....
I just recived this comment on an older post I have (January - 2009) and thought that you all should read this in case you missed it. Why am I sharing it here? ....beacuse this happens -A LOT ! If you have a child or your an adult that comes down with Bells Palsy - you need to consider Lyme disease, 60% of all BP patients really have Lyme. Bell Palsy is one of the symptopms of Lyme.
For a more complet list on sympotoms visit this link http://bellspalsylymesdisease.blogspot.com/2009/04/lyme-symptoms.html
From Jessica
I had bells palsy years ago, and had SEVEN negative lymes tests before going to a neurologist who finally found out I was in 3rd stage lymes disease. It is such an embarrassing horrible thing. Especially at the age of 14 when I had gotten it. But yes....CANNOT STRESS ENUF about repetitive testing. If I didn't agree to finally get a spinal tap, would have taken years longer or never have known and maybe died.
I DID finally recover,after months of staying in the house and hiding from my teenage friends. (I was a ballet dancer and competiton cheerleader- neither of which I would do looking like that)
I still remember going from doctor, and my mother just sitting up at nite crying because she didn't know what was wrong with her only. child... it got to a point where I thought I would b like that forever and got very suicidal. (Which I an positive has something to do w lymes also. I was a VERY positive child and all of a sudden was going from As and Bs to Ds and Fs in school. PLEASE PLEASE KNOW THAT THERE IS RECOVERY.... I AM 100% BETTER NOW, and a happy healthy 34year old women. Good luck to u all and my prayers are wu
For a more complet list on sympotoms visit this link http://bellspalsylymesdisease.blogspot.com/2009/04/lyme-symptoms.html
From Jessica
I had bells palsy years ago, and had SEVEN negative lymes tests before going to a neurologist who finally found out I was in 3rd stage lymes disease. It is such an embarrassing horrible thing. Especially at the age of 14 when I had gotten it. But yes....CANNOT STRESS ENUF about repetitive testing. If I didn't agree to finally get a spinal tap, would have taken years longer or never have known and maybe died.
I DID finally recover,after months of staying in the house and hiding from my teenage friends. (I was a ballet dancer and competiton cheerleader- neither of which I would do looking like that)
I still remember going from doctor, and my mother just sitting up at nite crying because she didn't know what was wrong with her only. child... it got to a point where I thought I would b like that forever and got very suicidal. (Which I an positive has something to do w lymes also. I was a VERY positive child and all of a sudden was going from As and Bs to Ds and Fs in school. PLEASE PLEASE KNOW THAT THERE IS RECOVERY.... I AM 100% BETTER NOW, and a happy healthy 34year old women. Good luck to u all and my prayers are wu
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