Friday, September 18, 2009
Working while having a picc-line
I am feeling better and trying to get back to my life - but sometimes I am walking a fine line. In the workshops no one would even think I have Lyme or any problems - but sometimes I feel pretty lousy, I have learned to pace myself. I have had students say, if this is you when your feeling bad, Jesus I can't even imagine what you would be like when your well. All I can say this is a battle that I intend to win.
I had to cancel all of my national and international workshops due to this disease but planed on keeping all of my California workshops. After having an allergic reaction to the dressing for the picc-line and seeing how it effected my whole body, (to my surprise) I am very happy that I did. It is one new experience after another, but my CD57 numbers are increasing and I have learned the importance of the picc-line.
I have had the picc-line for about 5 months now (but don't think it will be much longer). Before the allergic reaction to the dressing I had the first picc-line for 4 months. It has not been terribly fun, the first one was easier than the second, I developed a histamine reaction to my first infusion of the week, and found taking children's Benadril helped .....I wanted to quit, but the picc-line has been the only thing that has made a difference and improvement.
When I first got the picc-line they all said I could travel but it really is not as easy as it sounds, perhaps if you are resting but working can be a little bit of a challenge, lifting, reaching, infusion times etc. you just have to be careful and aware. Sometimes I am on the verge of disbelief that I have to teach a workshop at that moment, but when I am there I am filled and lifted by the response of the students and helping them.