Tuesday, September 29, 2009

Hold the Antibiotics

I have a feeling that I am on the winning side of this thing but then started to have a pain in my right side, back & under my ribs, I knew it was one of my organs. My doctor called me in to go over my current test results and ordered my to stop all antibiotic immedialy. My liver ensimes were elevated to a point that we needed to allow it to return to normal. It is not unusual for the liver to elevate while on so many antibiotics and he is watching me like a hawk. He explained that we need to see how quickly the liver recovers to see which one of the antibiotics is taxing my liver. Quick improvement means the IV Rochepin slow means the oral. If it is the IV Rochepin we will just change to a different infusion.

Had another CD57 today - should know soon if there is more improvement.
If anyone thinks being sick means that you sit around the house all day ...boy are they wrong, all this driving to doctor appointments is like having another full time job and exhausting....but I do believe I am finally close to the finish line, that is why when I don't feel good I can't really wrap my head around it because I feel as if it is gone but then have to realize I might still have a ways to go. It's been over 2 1/2 years since I had the noticeable onset of my problems and 1 year 1 month of treatment now.


  1. Hey there, I know exactly what you are going through. I was diagnosed in October 2006 and continue on antibiotic treatment since that date. I take many supplements and I have completed 40 hyperbaric chamber treatments. All in all, I am in better shape then I was. I think one of my biggest problems is the mono. It becomes active often even though I take medicine to help prevent that. However, the mono makes me very tired and just feeling lousy. I have been to the doctor three times this week so I know what you mean about not being able to stay at home and get rest. Between the doctors and pharmacy, I spend most everyday going to one of them.

  2. Hope your liver picks up again soon. Even when we think we are on the final lap something else seems to creep up on us with Lyme.

    Good luck.

  3. Thank you both, all-in-all it's just one foot in front of the other ...just keep going. At this point since I am not in my routine of infusing myself with antibiotics I can see how I might get a little sloppy. I have to be sure that I still flush the picc-line every day or every other day so I have a good blood return when they draw blood and I am not so egar to take all of my pills when my routine has been changed.
    I am noticing a little more joint pain - not that surprising and a little pain behind my eye - something like a Herx, but since I am off of the antibiotics what could it be?
    Have another unexpected Dr.s appoinment today to have the eye checked.