Sunday, September 2, 2012

LOOKING AT LYME DISEASE - MSIDS

Mis diagnosed as ME/CFS, Fibromyalgia, Poly Myalgia Rheumatica significantly improved when treated for Lyme Disease. Perhaps more aptly described as Multi-Systemic Infectious Disease Syndrome - MSIDS.

POLY MYALGIA RHEUMATICA

http://ard.bmj.com/content/49/7/521.abstract

Ann Rheum Dis 1990
Research Article
A seasonal pattern in the onset of polymyalgia rheumatica.
M A Cimmino,
R Caporali,
C M Montecucco,
S Rovida,
E Baratelli,
M Broggini
+ Author Affiliations

Department of Rheumatology, Genoa University, Italy.
Abstract
The seasonal distribution in the onset of polymyalgia rheumatica (PMR) was determined in 58 patients with the disease and compared with that in 44 patients affected by rheumatoid arthritis of elderly onset (EORA). Thirty six (62%) cases of PMR developed during May to August; by contrast, only 14 (31%) cases of EORA developed in the same months, this latter disease failing to show any seasonal clustering. The monthly distribution of PMR correlated with outside temperature and hours of sunshine. These data suggest that PMR might be triggered by such factors as actinic damage of superficial vessels or infective agents with a seasonal cycle. Finally, the summer clustering of PMR may be helpful in the differential diagnosis from EORA.

Hmm! May to August isn't that prime tick sequesting time?
What a thought provoking piece of research shame they didn't consider other epidemiological possibilities. My own illness which was diagnosed as Poly Myalgia Rheumatica turned out to be Lyme Disease. In fact reading about Lyme Disease and knowing the many problems with the vascular system I have to question the Giant Cell Arteritis? But then hey perhaps that is just me adding two and two and making five, what would I know about medicine.

I am just glad that my GP finally realised after 4 years of illness with Fibromyalgia, ME/CFS, arthritis and muscle weakness leading to a Poly Myalgia Rheumatica diagnosis that it was possibly Lyme Disease some months later a specialist confirmed her suspicions. I was treated on long term antibiotics in line with ILADS Guidelines and eventually recovered my health.

I wonder how many patients suffering with Poly Myalgia Rheumatica are properly assessed for Lyme disease especially with the testing being so unreliable.

Read more about it, contact information  and comments
http://lookingatlyme.blogspot.com/2010/03/poly-myalgia-rheumatica.html

2 comments:

  1. There is a Lyme petition at the following address:
    https://petitions.whitehouse.gov/petition/reform-infectious-disease-society-america-treatment-guidelines-lyme-disease/Pj9jG0pX

    The petition will only be up until 2/10/13, and we need 25,000 signatures for the White House to review and respond.

    This is the best chance for raising Lyme awareness I have seen, so please spread the word!

    ReplyDelete
  2. Polymyalgia Rheumatica is a not so common disorder of shoulder which causes toughness and extreme pain in the shoulders which further goes into the hips also.

    ReplyDelete