My best friend has it too

Just to let you know how prevalent Lymes is, to our surprise I just found out today that my best friend also has Lymes. She was bitten by a tick in December and at that time she described it as black tick with a red hale low around it's rump, I told her that sounded lick the deer tick and told her some of the symptoms to watch out for the next month.

About 2 week later she started with a little nausea, sore throat, sinus problems then fatigue, and she felt as if she had a little cold but it didn't seem to go away. She sounded congested but then it started to hit her jaw, ear, then having slight headaches. She went to the doctors they didn't give it much merit, after watching everything I have gone through and listing to what I have said about the disease she insisted on starting a short coarse of antibiotics - just in case. I then took her to my doctor where she explained her symptoms, they decide to test her through Igenex.

Since so many tests come back with false negative results a short coarse of antibiotics can really help before testing. The antibiotics create a die off which then shows up much better during testing. If you have a negative Lymes test but still have symptoms retesting after a coarse of antibiotics is helpful and may give you different results.

Chronic Lyme Disease does exhist

The Infectious Disease Society’s (IDSA) is trying to say that there is no such thing as Chronic Lyme Disease. This would allow Insurance companies to refuse to pay for treatment of people with Lyme Disease after 30 days.

Please take a Minute and sign this Petition!!
Lyme Disease Association

Lyme - Links

Lyme Disease

Symptoms

Description and Treatment Protocol
Lyme Disease
Lymes
Lyme Disease:
Questionable Diagnosis and Treatment
Under our skin blog
Under Our Skin You tube trailer
Coping with the Herx reaction

Lymes & MS
Lymes & Bells Palsy

Organizations
ILADS
California Lymes Diease Association.
American Lymes Foundation
Candaian Lymes foundation

The Rash (not everyone gets this) Photos

Testing Igenex
Other testing
Stricker panel
CD57 Test

COINFECTIONS: A SYNOPSIS
LYME DISEASE COINFECTIONS
Coinfections
Babesiosis
Why you need Magnesium

My Doctors Dr. Bouch & Dr. Schweig

I feel lucky

It's been almost 2 years and I feel so fortunate for whatever movement I have in my face (I feel I am doing pretty darn good) and extremely lucky to be able to blink my eye. The doctors wanted to put a gold weight in my eyelid to help me blink but I wanted to wait. What a struggle to blink - it took allot of conscious thought and focus to get the lid to move and finally after 5 months it did. I am starting to get my smile back, don't drool as much, my eye lashes are going up again, I don't have pain in my face - I feel very lucky. At this point if you met me you might not even know that much is wrong.

When I started feeling a little better

When I started feeling a little better from Bells I had no idea that the underlying problem was Lymes. I tried to resume life but would still be exhausted, Bells doesn't usually cause exhaustion that is when you should have a Lymes test.

Acupuncture for Bells Palsy

You can't really do much for Bells palsy, except get rest, take antiviral meds and steroids but that is still debatable. If you are on these meds if you get a Lymes test it will come back negative and not give you an accurate result. Again 60% of Bells Palsy patents have Lymes and you should only get a test where they do extensive testing 3 weeks of culture not a quickie 3-day test. Once paralyzed you need to try to stimulate the nerves again, my neurologist said I would never get better since I was past the timeline they give for recovery - 3 months. I told her at 3 months I was just starting to get a tiny tiny bit of nerve recovery. Nerve recovery can still happen up to 2 possibly 3 years. To help that along acupuncture or PT electrical stimulation is helpful.

Taking an antibiotic break

My CD57 numbers have not improved in spite of my feeling better, so I will be off antibiotics for 3-6 weeks then start IV therapy - pic line at the end of April for about 4-6 months.

I have been off of antibiotics for about 4 days and am starting to feel joint pain, muscle pain in the back and night sweats etc. again. What we have been working on the Babesia more than attacking the Lymes but we thought it might have had an effect on it. So actually I have been in a holding pattern.

I have heard of Dr. Gordan but don't know much about him. I have thought about seeing him myself but am still seeing Dr Schweigh http://www.hillparkmedicalcenter.com/practitioners.html#sunjya I believe he is doing everything he can and he has spoken to Joseph J. Burrascano Jr, MD: (the granddaddy who has written the guidelines for Lymes treatment) so I feel he is on top of it. http://www.ilads.org/guidelines.html