Saturday, September 11, 2010

I'm In Remission


Got the word the other day that I am done with my treatment and that I am in remission.

I have been symptom free for almost a year, so I have the okay to resume my life without antibiotics. I am still supporting my immune system with many of the supplements I was taking. I just had another full panel test and at least my body is now starting to rec zone this as a problem and has started to kick in to fight. This doesn't mean I can't get it again or have another bout with it but it does mean I have fought a good war and am on the winning side.

I am trying to keep my stress level down, meaning that some things that use to bother me are really not that important and prioritize what really is. It's funny how I can now see things that when people want to engage in a trivial issues how unimportant it is.

I am grateful for the opportunity to have learned so much that I have been able to share and help others. I believe attitude is everything. It is really tough to keep your head up and keep on fighting when you think it will never end, and it is so very sad when many of your loved ones really do not have a clue of what you are going though and think that all of your doctor appointments are unnecessary and a waste of time and money. But they don't have the information or education on this subject and there is no easy answer or quick fix. If you only treat the symptoms and not the problem it will continue to be an issue.

In any case I'm in Remission !!!

Monday, August 9, 2010

How it Started

Before I really had the classic clear symptoms. I would screw up when filling orders (i thought I would fire me if I was my employer). I felt like I could not complete sentences ( it was like the brain fog you have after kids) I thought I was maybe having early Alzheimer's ???? I couldn't remember where to start when teaching a workshop, I would use other words than the ones I wanted to when talking - I thought oh that's okay, it's the artist in me. I started slipping and banging into things, I didn't have a good concept of where my body ended and an object began. as it started to really progress I felt off, I had a pain that started in my left knee traveled to my right, up my hip, to my back then neck...I thought I should see a doctor but didn't know what to tell them, thought I had some kind of virus moving through my body. had really bad headaches for about a week but Advil took care of it, started getting more exhausted, could turn my neck so well thought I was just getting older, then I thought maybe I had meningitis but I could touch my head to my chin so I knew it wasn't that. My neck start to make crunching sounds, you know like if you are getting a kink out.

then my left ear all of a sudden hurt but not like an earache, inside but not by the drum, then other headache, - that was the beginning of the Bells palsy and the nerves started to get paralyzed. I felt like I was hit in the head with a bat, unbelievable pain, they put me on steroids which is not good for Lyme and helps to hide it if you are tested, it goes on and on....etc
the next year I was diagnosed with a hyperthyroid / Graves disease and I thought - this just can't be right, I am a health person and there is something seriously wrong, again another false negative Lyme test the meds for the hyperthyroid / Graves disease helped but where only masking the symptoms of the problem. They wanted to kill my thyroid, but I had a cousin that said whatever you do don't let them do that if at all possible, thank god i listened.

It does go on and on and is a long story. But many of the symptom I had were classic and they never paid attention to them or to what I and my husband were saying, we suspected Lyme but the docs were not interested and said it is not in our area. That is why I am so passionate about letting others know and try to help them inform themselves. you can always visit my BP/Lyme blog for more updates and information :)

Thursday, August 5, 2010

Tick''em off your list - Borders Today

Tick''em off your list - Borders Today
Champion Scottish canoeist, and holder of a mountain climbing record is on a mission to warn other outdoors enthusiasts about Lyme disease.

Wednesday, August 4, 2010

Informed Patient: Steps to Fight Ticks in the Yard - WSJ.com

Informed Patient: Steps to Fight Ticks in the Yard - WSJ.com

From the Wall Street Journal: "Not only are more diseases being spread by ticks, but more species of
ticks are transmitting disease, including some, like brown dog ticks,
not previously considered a danger to humans." For more information click on the link above